#BtheVoice Video Library
The B the Voice story bank is a global effort to elevate the voices of those living with hepatitis B. It’s a compliment to the #justB storytelling campaign that focuses on the U.S. Each story is unique and is told by a person living with hepatitis B. Many of the topics covered by the storytellers include stigma, discrimination, access to healthcare and more.
Patrick’s Story of Living with Hepatitis B Malawi
Patrick first learned he was living with hepatitis B during a routine medical test in Malawi, despite feeling completely healthy. With no specialized treatment facilities available, he managed his status through regular checkups. But when career opportunities abroad arose, his dreams were cut short — denied work permits in Jordan and Iraq solely because of his hepatitis B status. Now back in Malawi, Patrick speaks out against discrimination, reminding us that people with hepatitis B can live healthy, productive lives. He shares his story to call for change so that skills, not medical reports, define opportunity.
Mark’s story of living with hepatitis B in the Philippines
Mark was diagnosed with hepatitis B at the age of 18. He discovered he had hepatitis B when he was applying for a job at a fast-food chain that required testing and screening. Mark was heartbroken, as his status hindered his dreams of working abroad, and he lost interest in activities he normally enjoyed. He was lost and had no idea how or where he contracted hepatitis B, but luckily, he had supportive parents and loved ones. He joined the Yellow Warriors Society of the Philippines (YWSP), where he found others who are also living with hepatitis B. Mark now volunteers with YWSP to educate his local community and people around the world about hepatitis B.
Jame’s story of living with hepatitis B in the Philippines
James, 27, is one of four siblings, out of five, who have hepatitis B. He first learned about the disease when his sister tested positive. Following this, his father urged the entire family to get tested. James encourages others not to let their status get in the way of enjoying their lives.
Julie Ann’s story of living with hepatitis B in the Philippines
Julie Ann, 36, learned that she had hepatitis B when she was pregnant with her first child. Julie was shocked because, when she was a nursing student, she had been medically required to get a hepatitis B vaccine, and during a visit to an infectious disease doctor, she was told she was nonreactive. She joined the Yellow Warrior Society, where she participated in a five-year study called CANDLE. Julie urges others to end the stigma and discrimination against people with hepatitis B.
Rodel’s story of living with hepatitis B in the Philippines
Rodel, 54, experienced rejection from a former partner upon revealing his hepatitis B status and has remained single ever since. He speaks about the challenges he has encountered in securing employment as an overseas worker due to his condition. Rodel shares his journey of accepting and living with chronic hepatitis B.
Imee’s story of living with hepatitis B in the Philippines
In 2016, after her brother was rejected for employment due to a Hepatitis B diagnosis, Imee from the Philippines discovered that she and three of her five siblings also tested positive for the disease. Lacking proper knowledge about Hepatitis B, she sought information online and medical advice but struggled with the high costs of treatment and regular health monitoring. Facing depression and job loss, she found support through the Yellow Warrior Society of the Philippines, where she now advocates for awareness, equal rights, and better government support for Hepatitis B patients. She remains hopeful for future affordable treatments and the passage of anti-discrimination laws.
Dilrabo’s Story of Living with B and Delta in Uzbekistan
Dilrabo’s journey with hepatitis B began 18 years ago, but everything changed when she was later diagnosed with hepatitis D. At first, she felt fear, confusion, and isolation — unsure how to move forward. With the help of her caregiver and support from others living with hepatitis B and D, she slowly found strength and hope. Today, she manages her health through medication, lifestyle changes, and self-care. Her story is a powerful reminder of the importance of support, staying positive, and never giving up.
Maryam’s Story of Living with Hepatitis B in Nigeria
After Maryam's mother passed away from hepatitis B, she was advised to get screened. She found out she was positive for hepatitis B. Jenesso Development Initiative helped her get screened and helped her find medication which helped her feel better. Her children were screened shortly after. It was a difficult time for her since she was scared that she would suffer the same fate as her mother. She encourages others to get screened and to know their health status.
Frank’s Story of Living with Hepatitis B in Sierra Leone
Frank's journey with hepatitis B began in 2022 when he experienced persistent chest pain. After further tests in 2023, he learned he had contracted hepatitis B, a diagnosis that left him feeling discouraged and fearful, especially given the high death rate and lack of support in Sierra Leone. With encouragement from his wife, Frank found the courage to search for treatment, eventually finding a doctor who provided him with medication that helped his body build antibodies. Despite setbacks, Frank continues to rely on his faith, determination, and the support of his family as he faces the ongoing challenge of managing the virus. His message to others is to accept their condition, stay strong, and never lose hope.
Dilnora’s Story of Living with Hepatitis B and Delta in Uzbekistan
Dilnora has been caring for her sister with hepatitis B since 2005, offering physical, emotional, and logistical support throughout her health journey. After her sister was later diagnosed with hepatitis D, Dilnora shifted her academic and professional focus to hepatitis education and advocacy. She pursued graduate studies in health communication, worked as a patient navigator and researcher, and helped launch a support group for people with hepatitis B and D in Uzbekistan and the U.S. Dilnora emphasizes the importance of mental health, family communication, and community support in managing chronic illness.
Jeremiah’s Story of Living with Hepatitis B in Nigeria
Jeremiah discovered he had hepatitis B during a routine blood donation for a sick friend, which led to early detection of the virus. Before then, he had no awareness of hepatitis B and was shocked by the diagnosis. The news deeply affected his confidence—he withdrew from social activities, faced discrimination, and felt isolated. His relationship also suffered due to fear of stigma. With the support of his uncle, who helped him find a doctor and offered encouragement, Jeremiah began to regain hope. He now urges others to get tested and know their hepatitis B status early.
Ibrahim’s Story of Living with Hepatitis B in Nigeria (Hausa)
Ibrahim felt sick for about a month until he found out he had hepatitis B. At the time, he was taken to the hospital and was tested for typhoid and malaria. He was treated with medication but continued to feel unwell, experiencing nausea and vomiting for about a month. His condition worsened and he was taken back to the hospital and that was when the doctor broke the news to him that he had hepatitis B. This impacted his daily life drastically as he felt like he had to isolate due to misconceptions about how the disease was spread. Even when he played football, he experienced discrimination from teammates. Despite the negative reactions from other people, he still continues to exercise to stay healthy.
AD’s Story of Living with Hepatitis B in Uganda
AD tested positive for hepatitis B in 2017, which deeply impacted him mentally and emotionally, especially as he was the only one in his family who tested positive. He faced stigma in his community but was determined to manage his health by following medical advice and starting treatment. AD emphasizes the importance of seeking guidance from trained professionals and adhering strictly to treatment. Since beginning his medication, his viral load has dropped to undetectable levels. He encourages others living with hepatitis B to stay committed to their treatment plans for the best outcomes.
BA’s Story of Living with Hepatitis B in Ghana
BA, a nurse from northern Ghana, discovered he was living with hepatitis B during a blood donation attempt to save a child. The diagnosis, which was not handled confidentially, deeply affected him and led him to seek confirmation and care. Despite the initial shock, BA has turned his experience into a mission, educating others and leading hepatitis B vaccination efforts in rural communities. With 16 years in nursing, he sees each encounter with hepatitis B as a chance to raise awareness and offer hope. BA encourages others living with the virus to stay positive, reminding them that there is life and hope after diagnosis.
Alex’s Story of Living with Hepatitis B in Texas
Alex shares his journey of living with hepatitis B for over 50 years, beginning with symptoms he experienced as a young man in Hong Kong. He was officially diagnosed by Dr. Andrew at Hope Clinic in Houston, who informed him that he likely contracted the virus from his mother. Alex reflects on the stigma he has faced as an Asian person living with hepatitis B and emphasizes the importance of community education and awareness. He encourages others to live a healthy lifestyle, stay positive, and not let the diagnosis define their lives.
N’s Story of Living with Hepatitis B in Pakistan
N discovered they had hepatitis B while in university after attempting to donate blood. The diagnosis left them in shock, and they felt overwhelmed with fear and worry, particularly about how their mother would react, as she had high expectations for them. N initially struggled with isolation and fear of being avoided by friends, but they eventually came to terms with their condition. Their journey began with confusion and anxiety, but they now seek to offer advice to others facing a similar situation.
Richard’s Story of Living with Hepatitis B in Nigeria
Richard from Nigeria shares his personal experience of discovering he was positive for hepatitis B. He explains how education on hepatitis B, including screenings and lifestyle changes, positively impacted his life. He emphasizes the importance of awareness and encourages others living with hepatitis B to stay positive despite discrimination.
Solomon’s Story of Living with Hepatitis B in Nigeria
Solomon discovered he was positive for hepatitis B in July 2023, which changed his life drastically, bringing challenges like stigma, trauma, and discrimination. Initially, he was devastated and regretted not knowing about the virus earlier, as he would have taken the vaccine to prevent it. Despite the hardships, he is now in a much better place and encourages everyone to get tested, know their health status, and work towards eradicating hepatitis B.
Taoheedah’s hepatitis B experience in Nigeria
Taoheedah Abdul Karim is a passionate public health advocate in Nigeria with five years of experience in community health projects, focusing on hepatitis B and HIV. Her advocacy journey began after diagnosing a pregnant woman with hepatitis B while working as a lab assistant in 2023, which led her to get tested and vaccinated. She then encouraged her colleagues and family to do the same and later founded the "Health for All Initiative for Community Health" to promote health education and interventions. Through her organization, she has led various hepatitis awareness and prevention projects, aiming to eliminate public health threats. Taoheedah emphasizes the importance of hepatitis B testing and vaccination in preventing liver cancer and is committed to raising awareness across grassroots communities in Nigeria.
SF’s story of living with hepatitis B in France
SF believes he contracted hepatitis B around 15 years ago but was unaware of it until he moved to France in 2019. He donated blood at a college event, where he was informed that his blood was "not good," but he received no further details. Over the years, he felt unwell but didn't know it was hepatitis B. After testing in France, he discovered he had chronic hepatitis B and began treatment. SF emphasized the importance of getting regular health check-ups to know one's health status, particularly in regions where hepatitis B is prevalent. Despite his diagnosis, he has been living a relatively normal life with his wife and four children, and his wife does not have hepatitis B. He expressed gratitude for his health and urged others to be cautious about their health and relationships.